Al Fatihah

   Entah kenapa tiba-tiba aku teringat kepada seseorang.Seseorang yang banyak mengajarku erti hidup.Mengajar tentang ketabahan, kesabaran, pasrah dan redha.Pada suatu malam,( tahun sebenar aku tak ingat),aku menerima panggilan telefon daripadanya.Jam waktu itu menunjukkan lebih 12 malam.Dia menelefonku dari hospital.Memaklumkan tentang dia yang akan menjalani prosedur perubatan seorang pesakit Systemic Lupus Erythematosus .Kalau tak silap berkaitan dengan proses memindahkan kulit.Suaranya tenang.Memaklumkan tentang banyak perkara yang tak boleh aku kongsikan di sini.Kami berbual selama lebih kurang sejam sebelum talian terputus tanpa sempat kami mengucapkan selamat tinggal.Malam itu aku rasa tak sedap hati.Dua hari kemudian, aku terima berita, dia telah pergi menyahut panggilan Ilahi.Hingga saat ini aku masih tak dapat melupakan kata-kata terakhirnya sebelum talian terputus iaitu carilah pelangi selagi ada hayat kerana pelangi ada di mana-mana.Moga dia, sahabatku, Norhanita Mohd Suhaimie, tenang di alam sana.

Allahyarhamah Norhanita binti Mohd Suhaimie yang berbaju merah bertudung putih.

Al Fatihah untuk temanku

  

  

Tabahlah Deno

   Sebenarnya, dah lama aku tak menjenguk blog Deno.Bukan aku tak ingat padanya.Aku ingat sangat.Tapi, tiap kali aku ke blog dia, aku rasa sedih.Sedih sebab aku cuma dapat berkongsi kesakitannya sebagai pesakit SLE tapi aku tak mampu untuk berbuat apa-apa.Selain itu, aku rasa sedih yang amat sangat kerana setiap kali melawat Deno di blog dia, aku mesti teringatkan kawan baik aku yang telah meninggalkan aku buat selama-lamanya kerana SLE.Walau pun entah berapa tahun berlalu, aku masih tak lupa kerana pada malam sebelum pemergiannya, arwah menelefon aku dalam jam lebih kurang 12 malam.Arwah ajak aku berbual tentang macam-macam.

   Sebelum memutuskan talian telefon, arwah berkata, ' Sakitnya Allah saja yang tahu'. Masa tu arwah baru lepas buat pembedahan kerana SLE tapi aku tak pasti pembedahan apa.Aku di Johor dan dia di Perak jadi telefon je tempat kami berbual.Dan pada esoknya, kalau tak silap jam 6 pagi, arwah meninggalkan aku .... Dan aku hanya tahu dia telah tiada selepas beberapa lama .... Kesannya, hingga saat ini aku masih lagi tak boleh lupakan dia sahabatku Nor Hanita Suhaimi.Cuma doa buatnya agar ditempatkan di kalangan mereka yang beriman.Buat adikku, Deno, tabahkanlah hati.Doa sentiasa bsah di bibirku buatmu...

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Adikku Deno sedang di rawat di Hospital Sultanah Nur Zahirah, Kuala Terengganu.

Bagaimana nak ku hilangkan rindu pada temanku yang telah tiada?

Blogger Deno di The Star

   Kepada blogger-blogger tegar, tentu kenal blogger Deno, kan? Khamis, 23 Ogos kisah Deno dengan SLE disiarkan di The Star.Sebagai seorang yang pernah tinggal dengan pesakit SLE, aku boleh gambarkan bagaimana keadaan Deno.Mudah-mudahan, Allah sembuhkan penyakit Deno dan berikan kekuatan padanya untuk menempuh hidup yang mendatang.

Living with lupus

WHEEL POWER
By ANTHONY THANASAYAN

SYSTEMIC Lupus Erythematosus (SLE) is a chronic auto-immune disease in which the immune system attacks the body’s cells and tissues, resulting in inflammation and tissue damage.

Dayang Norhidayah Ngah who hails from Kuala Terengganu knows all too well about SLE. Her nightmare began back in November 1999.

Dayang Norhidayah Ngah takes her battle with lupus in her stride.

Dayang was 10 when she came down with a fever that refused to go away.

“My parents thought it was nothing unusual and took me to the clinic,” said Dayang.

When Dayang’s feet started to swell, she was sent to the Kuala Terengganu General Hospital. Despite a month of intensive medical tests, Dayang’s condition deteriorated and she was referred to several child specialists in Kuala Lumpur.

“I remember Dec 9, 1999, clearly. It was the day the hospital became my second home,” said Dayang. “It took a full two weeks before my ailment was finally diagnosed. Back then, no one in my hometown had heard of SLE.”

Lupus attacked Dayang’s kidneys, causing inflammation. She had to go through many rounds of treatment to stay alive.

Dayang was put on dialysis. She was given steroids which resulted in her having a “moon face,” a common side-effect.

Lupus also attacked her brain, and Dayang had a violent seizure and ended up in ICU. It was another four months before her condition was brought under control.

Despite missing many lessons in school, Dayang managed to get straight As in the UPSR exams.

“My mum taught me Maths, Science and English when I was admitted to hospital and at home when I was not able to attend classes. My sisters helped, too.”

Today at 23, Dayang takes her battle with SLE in her stride. She shuttles between Kuala Terengganu and Kuala Lumpur for her treatments.

Dayang is on peritoneal dialysis, which is done at home, as her kidneys have been damaged.

Dayang maintains a positive outlook despite not being able to live a normal life and enjoy outdoor activities like her peers.

“I am easily susceptible to illness and infections. If I were exposed to sunlight for 15 minutes, I would develop high fever and break out into rashes. There would be reddish butterfly marks on my skin, especially on the areas where my skin was exposed to the sun.

“Sometimes this makes me feel depressed. But I always remember how fortunate I am to have a very supportive family. My Abah is my rock. He is a positive and strong man. He never gives up hope. Ma is a godsend. Her patience inspires me. My sisters Kak Long, Ngah, Obie and Ana, always cheer me up when I am down.

“Although I live with lupus, I don’t allow it to stop me from pursuing my dream to get a diploma in accounts in Universiti Teknologi Mara, Shah Alam.

“I’ve come to accept reality and I try not to lose hope. I’ve learnt that the best way to deal with SLE is to take my medication conscientiously, and understand the disease and its impact on me, both physically and emotionally. It is also vital to follow the advice of the doctors and learn to stay on top of lupus.

“Despite what I have to go through, I am able to have a good quality of life,” added Dayang.

SUMBER

Phewittt!!!

    Balik dari majlis Maulidurrasul di sekolah, aku terus lepak.Penatnya!!Dalam hati terfikir macam manalah agaknya YB atau PM atau orang-orang bisnes yang sentiasa sibuk 24 jam!Memang mereka manusia-manusia hebat!Dek kerana letih, aku layan Kuch Kuch Hota Hai sampai habis.Tak sangka pulak ramai yang update status FB tentang filem tu walau pun ia filem dah lama.Sedih jugalah cerita tu tapi aku jenis yang kedekut airmata...

   Habis je menatap wajah handsome Shah Rukh Han, aku mula mengorak langkah untuk mengemas rumah.Rimas rumah macam tongkang pecah!Sambil-sambil tu aku on Fb dan update Scarlett's Petals ku tersayang.Tiba-tiba je, badan letih jadi bertenaga bila dapat tahu adikku Deno sudi buatkan doodle untuk aku.Terima kasih Deno!Cantik sangat doodle tu apatah lagi dengan warna purple yang so sweeeet!!!Jap lagi akak letak doodle tu kat blog ye!

Phewiit!!!!

Teacher Scarlett nak ke sekolah!